Third Meeting of the World Congress for Freedom of Scientific Research
April 4-5-6, 2014
Rome Chamber of Deputies / Capitoline Hill
under the patronage of the Presidency of the Council of Ministers, the Chamber of Deputies, the Ministry of Foreign Affairs, the Ministry of Health and the City of Rome
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Friday, April 4th
Chamber of Deputies
Aula dei Gruppi Parlamentari
Opening Session
9.30am – 1pm
Chair: Roberto GIACHETTI, Vice President of the Italian Chamber of Deputies
Institutional greetings:
Giorgio NAPOLITANO (message), President of the Italian Republic
Pietro GRASSO, President of the Senate of Italian Republic
Stefania GIANNINI, Minister of Education, Universities and Research
Introduction:
Charles SABINE, former war correspondent, NBC News, affected by Huntington’s disease
Emma BONINO, former Minister for Foreign Affairs (Italy)
Taïeb BACCOUCHE, former Minister of Education (Tunisia)
Presentation of the Global Index on Freedom of Research and Self-Determination, in partnership with Bryant University and Bentley University (USA)
Andrea BOGGIO, Assistant Professor of Legal studies, Bryant University
Thematic report:
“Should We Have More Surveillance Than The USSR?”
Richard STALLMAN, President, Free Software Foundation
Bridging the gap between science and politics.
Chair: Marco CAPPATO, World Congress Coordinator
Discussion with:
Krista VARANTOLA, Finnish Advisory Board on Research Integrity, Council of Finnish Academies
Roberto BERTOLLINI, Chief Scientist and World Health Organization Representative to the European Union
Maciej NALECZ, Director, Executive Secretary of the International Basic Sciences Programme, UNESCO
Luciano D’AMICO, Dean, University of Teramo (Italy)
Institutional greeting:
Benedetto DELLA VEDOVA, Undersecretary of State for Foreign Affairs (Italy)
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Afternoon Session
2.45pm – 7pm
Chair: Giulio COSSU, Professor of regenerative medicine, Institute of Inflammation and Repair, University of Manchester
Thematic reports:
“Why the international drug conventions are the worst censorship of research since the Catholic Church banned the telescope”
David NUTT, former advisor on drugs policy to the British Government
“New styles of consumption of illegal drugs and new risks associated to it: multiple usage, health risks and the role of science in the assessment of laws”
Carla ROSSI, European Parliament representative, Management Board, European Monitoring Centre for Drugs and Drug Addiction
The Courts’ way: the constitutional and supranational protection of the fundamental right to freedom of research.
Discussion with:
“The status of the embryo at the European Courts and the Inter-American Court of Human Rights”
Filomena GALLO, Secretary, Luca Coscioni Association
María Eugenia VENEGAS, Member of the Legislative Assembly (Costa Rica)
Ana Virginia CALZADA, former President, Constitutional Room of the Supreme Court of Justice (Costa Rica)
Institutional greeting:
Emilia DE BIASI, Chair, Committee on Health, Senate of the Republic (Italy)
Thematic report:
“Fundamentalist Threats to Biomedical Research? – The Stem Cell Controversy”
Oliver BRÜSTLE, Professor of Reconstructive Neurobiology, University of Bonn Medical Center
Clara SATTLER DE SOUSA E BRITO, Patent Attorney, Visiting Professor, Catholic University Lisbon (Portugal)
Human embryos for health and research
(session promoted by the European Society of Human Reproduction and Embryology, together with patients’ Associations)
Chair: Joep GERAEDTS, Professor of Genetics and Cell Biology, Maastricht University (Netherlands)
Discussion with:
Luca GIANAROLI (Italy): “Reproductive health and its risks”
Siladitya BHATTACHARYA (United Kingdom): “The value of assisted reproduction”
Alan HANDYSIDE (United Kingdom): “Why are human embryos needed for research?”
Karen SERMON (Belgium): “Human embryonic stem cells and regenerative medicine”
Heidi MERTES (Belgium): “The donation of human embryos for stem cell research”
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Saturday, April 5th
Capitoline Hill
Sala della Protomoteca
Morning session
9.15am – 1.30pm
Institutional greeting:
Ignazio MARINO, Mayor of Rome
“Contested evidence, perceptions of risk and decisionmaking”
Chair: Elena CATTANEO, scientist, Senator for Life (Italy)
“Scientific freedom and responsibility in the biosecurity context”
Catherine RHODES, Research Fellow di etica scientifica, University of Manchester
“Freedom of science, critical thinking and cognitive capital: the future of liberal democratic values”
Gilberto CORBELLINI, Professor of history of medicine, Sapienza University of Rome
“Empirical analysis and precaution: a feasible match”
Claudio RADAELLI, Professor of Political Science, University of Bordeaux and Exeter
Thematic reports on the relationship between science and politics
“Reforms of the Academy of Sciences and Universities in Russia: political and scientific challenges”
Askold IVANTCHIK, Senior research fellow, French National Centre for Scientific Research (Bordeaux) / Senior research fellow, Institute of World History, Russian Academy of Sciences (Moscow)
“GM-crops: How to construct successfully bridges between Science and Politics – a difficult task”
Klaus AMMANN, Professor emeritus, University of Bern (Switzerland)
“The development and lack of application of GE animals in agriculture in North America”
Jim MURRAY, Professor of Animal Science and VM:Population Health And Reproduction, University of California, Davis
“The influence of some relativist ideas on antiscientific behaviours”
Andrea GRIGNOLIO
Proposals on how to fill the gap between science and politics
Chair: Gilberto CORBELLINI, Professor of history of medicine, Sapienza University of Rome
Among those participating:
“Behaviorally evidence-informed policy”
Olivier OULLIER, Professor of Behavioural and Brain Sciences, Aix-Marseille University
Armando MASSARENTI, journalist, Sole24Ore: Presentation of the proposal for a “Science Senate” in Italy
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Afternoon Session
2.45pm – 7pm
Chair: Filomena GALLO, Secretary, Luca Coscioni Association
Freedom and regulation: the impact on health.
Discussion with:
Beatrice LORENZIN, Minister of Health (Italy)
“Let Freedom Ring for Science: an American perspective”
Mary WOOLLEY, president and CEO, Research!America
“Past, Present and Future: The Impact of the Patient Advocacy Movement on Regenerative Medicine”
Bernard SIEGEL, Executive Director, Genetics Policy Institute (USA)
“The Ethics of Science and the Art of Politics: Bridging Gaps, and Protecting Science”
John COGGON, Reader in Law, University of Southampton
“A radical reform of policies governing research and scientific education”
Andrea BALLABENI, Adjunct Assistant Professor of Natural and Applied sciences, Bentley University
Presentation of the study on international regulation of patents
“Are patent claims really the evil for scientific research and patients’ interests?”
Amedeo SANTOSUOSSO, President, European Centre for Law, Science and New Technologies
and Carlo COLOMBO, University of Pavia
Clinical trials: medicine’s promises and patients’ expectations: an explosive mix
Coordinator: Alison ABBOTT, Senior European Correspondent, Munich, Nature
“Stamina is not the only problem: misusing bonemarrow stem cells in heart disease”
Discussion with:
Guido RASI, Director, European Medicines Agency
Luca PANI, DirectorGeneral, Italian Medicines Agency
Michele DE LUCA, Co-President, Luca Coscioni Association
Giuseppe TESTA, Head, laboratory of Stem Cell Epigenetics, European Institute of Oncology
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7pm – 8pm
Showing of the videos “An eye for an eye” and “Blindly”, by Artur ZMIJEWSKI (Poland)
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Sunday, April 6th
Capitoline Hill
Sala della Protomoteca
9.15am – 1.30pm
CoChairs:
Marco PERDUCA, UN representative, Nonviolent Radical Party
Piergiorgio STRATA, National Institute of Neuroscience (Italy)
“The communication of science”
Marina MENGARELLI, sociologist, Luca Coscioni Association
Thematic reports:
“The risk of a Vesuvius eruption: the certainty of it”
Giuseppe MASTROLORENZO, First Researcher, Vesuvius Observatory, National Institute of Geophysics and Volcanology (Italy)
“Solid science for hard decisions: The work of the Intergovernmental Panel on Climate Change (IPCC)”
Thomas STOCKER, CoChair Working Group I, IPCC
“Neurosciences and Law”
Dennis PATTERSON, Professor of Legal Theory and Legal Philosophy, European University Institute
Science, religion, laïcité/secularism and nonviolence
“Is there a science of morality?”
John HARRIS, Director, Institute for science, Ethics and Innovation, University of Manchester
“Nonviolence as a tool for the promotion of Human Rights”
Ramin JAHANBEGLOO, philosopher and academic, Professor of political science, York University (Canada)
Marco PANNELLA, Leader, Nonviolent Radical Party, Transnational and Transparty
Betty WILLIAMS, 1976 Nobel Peace Prize laureate
Taïeb BACCOUCHE, former Minister of Education (Tunisia)
Closing debate: The road ahead
Chair: Marisa JACONI, Department of Pathology, University of Geneva
The World Congress for Freedom of Scientific Research is sponsored by the Luca Coscioni Association and the Nonviolent Radical Party, Transnational and Transparty.